Hi Everyone, thank you for your kind wishes, truth is that Xantha is a healthy, BEAUTIFUL little girl, no complications in her birth, however has been diagnosed with a skin condition called epidermious bullosa (sorry can't spell it will try to write it down when I am next online. She was taken to Melbourne at 12 hours old to the Royal Childrens Hospital for treatment, I was driven down on Saturday where we have been learning how to treat her condition. Don't go and search too much on line for it as most websites are for the worst case scenario which we think she does not have, we are still waiting on test results to find out how bad it is and whether it was inherited (but that doesn't seem likely).
Basically her condition involves any "mechanical trauma" to her skin becoming a blister which needs to be lanced, and dressed to protect from infection. Its been a difficlut couple of days, we are now staying at Ronald Mc Donald House at RCH in Melbourne, have been very busy expressing as breast milk is the best thing to help prevent infection. I have been doing some breastfeeding, but she definately prefers the bottle, but I am hoping that with some help from the lactation consultant that we will have her mostly at least breastfeeding before we go home (don't know when as of yet).
Will hopefully post some photos soon, not sure how yet,
Mel